MAIN RESPONSIBILITIES
*Coordinate and manage IG operations in support of research, keeping the Head of IG, the Director for Research, and the Chief Operating Officer for INSIGHT apprised of outcomes and escalating issues as appropriate.
*Provide expert and specialist IG advice and expertise on health research and related data access initiatives, developing high-quality, user-friendly and accurate guidance in a range of formats.
*Provide expertise and advice on research management and proposals (grant applications), including research ethics and data sharing/licensing and/or service agreements involving personal data, liaising with the Head of IG and Moorfields General Counsel where appropriate.
*Manage information asset accession and information security reviews relating to research proposals, including Information risk assessments, data protection impact assessments for new and existing research systems/processes/projects involving processing of data, ensuring that proposals are compliant and in the required format for approval.
*Ensure research related policies, procedures and guidelines are compliant with data protection legislation and are implemented effectively and efficiently across the research function.
*Assess and report on the discharge of procedures and processes to identify gaps in current practice, and where required make recommendations.
*Work with the managers and principle investigators to ensure the maintenance of their entries to the information asset register.
*Develop and provide tailored IG training and guidance for research colleagues.
*Investigate and report on IG complaints and incidents in line with Trust policy as required, particularly where they are linked to research.
*Coordinate, develop and review appropriate information-sharing protocols that provide clarity of purpose and enable streamlining of information disclosure routes.
*Ensure the Trust is compliant with legislative requirement for data sharing or licensing.
*Support research leadership with the production of IG related data and reports, including for Moorfields Research Management Committee, Research Governance Committee, and for HDRUK purposes.
*Provide input to the Trust’s IG and corporate risk registers and reporting requirements.
*Manage the NHS Data Security and Protection Toolkit (DSPT) activity, including the collation and provision of evidence, and coordination of returns.
*Assist with DPA requests relating to research (including requests that overlap between the DPA and the FoIA) and respond to DPA complaints where necessary.
*To assist the Head of IG with IG Departmental work planning. This includes planning and coordinating specialist project advice and technical support, planning and coordinating specialist advice and guidance.
*There is an expectation that the postholder may be responsible for contractors/consultants hired to undertake a discrete piece of service work, and/or agency temporary staff.
*Monitor and support internal and management audit of research processes to identify IG gaps or weaknesses in current practices or systems. Ensure all recommendations are implemented to deliver an improvement in the research function delivery.
*Provide leadership for, and the IG element of research governance groups, ensuring terms of references are up to date and aligned with other governance structures at the Trust
*Manage, support and develop the Information Compliance Officer.